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  • HOME
  • ABOUT US
    • Who We Are
    • Where We Operate
    • Network Team
    • Network Board
    • Network Governance
    • Board Documents
    • Annual Reports
  • PATIENTS AND FAMILIES
    • Young Persons Group
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Outreach Clinics
    • Patient Surveys
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PATIENTS AND FAMILIES

Useful Information

Outreach Clinics

Outreach Clinics

Outreach Clinics

Delivering care closer to home is very much at the centre of the ambitions of the network 

Find out more

Network Surveys

Outreach Clinics

Outreach Clinics

The Network loves to hear your voice about CHD services and how they are delivered. 

Find out more

Our Hospitals

Outreach Clinics

Useful contacts

Find out about your local cardiology centre, local facilities and how to get there

Find out more

Useful contacts

Further Information

Useful contacts

Contact information for your nurse specialists and other useful contacts

Find out more

Further Information

Further Information

Further Information

Information about your condition and what to expect during your clinic visit

Find out more

Patient and Family Engagement Group

Join us! 


Your views should inform service development, this helps us get services right for patients and supports continuous improvement across the North East and North Cumbria. 


We recognise and value the contribution of those who use the CHD services in shaping the future.

Visit our "Patient and Family Engagement Group" page

Young Persons Group

Are you a young person aged 12 - 18 who lives with congenital heart disease?


Did you know your voice can influence decisions and services that affect you?


Get involved in this group, make new friends and make sure that the Network hears you and acts on your views!

Visit our "Young Persons Group" page

Research Opportunities

Have YOUR say on the future of Congenital Heart Disease research

Have YOUR say on the future of Congenital Heart Disease research

Have YOUR say on the future of Congenital Heart Disease research

 We are conducting a national study to identify and prioritise areas of future research in congenital heart disease that are most important to patients, their families, and healthcare professionals. This is your chance to have your say – 

so we want to hear from you! 

Find out more

Would you like to join the ADMISSION Patient Advisory Group?

Have YOUR say on the future of Congenital Heart Disease research

Have YOUR say on the future of Congenital Heart Disease research

ADMISSION is a new Research Collaborative funded by the MRC and NIHR that brings together scientists, clinicians and patients from five UK universities and hospitals (Newcastle, Birmingham, Manchester Metropolitan, University College London and Dundee) to transform understanding of multiple long-term conditions in hospital patients.

Find out more

Having a child with single ventricle CHD: Parental experience of role and identity

Having a child with single ventricle CHD: Parental experience of role and identity

Having a child with single ventricle CHD: Parental experience of role and identity

The purpose of this study is to interview parents of children aged 16 years or under with single ventricle CHD who have had their completed Fontan surgery. The study is looking to provide a platform for parents to speak about their experiences 


For more information click here or contact s.dandy@lancaster.ac.uk


Find out more

Research at Faculty of Medical Sciences at Newcastle University

Having a child with single ventricle CHD: Parental experience of role and identity

Having a child with single ventricle CHD: Parental experience of role and identity

 The Network is developing a research strategy and programme which aims to address issues that are important for the further development and improvement of clinical practice for the benefit of CHD patients. 


Click the button below to read more about research at Faculty of Medical Sciences at Newcastle University on our dedicated Research page!

Find out more

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