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Patient and Family Engagement Group
Your views should inform service development, this helps us get services right for patients and supports continuous improvement across the North East and North Cumbria.
We recognise and value the contribution of those who use the CHD services in shaping the future.
Young Persons Group
Are you a young person aged 12 - 18 who lives with congenital heart disease?
Did you know your voice can influence decisions and services that affect you?
Get involved in this group, make new friends and make sure that the Network hears you and acts on your views!
Research Opportunities
Have YOUR say on the future of Congenital Heart Disease research
Have YOUR say on the future of Congenital Heart Disease research
Have YOUR say on the future of Congenital Heart Disease research
We are conducting a national study to identify and prioritise areas of future research in congenital heart disease that are most important to patients, their families, and healthcare professionals. This is your chance to have your say –
so we want to hear from you!
Would you like to join the ADMISSION Patient Advisory Group?
Have YOUR say on the future of Congenital Heart Disease research
Have YOUR say on the future of Congenital Heart Disease research
ADMISSION is a new Research Collaborative funded by the MRC and NIHR that brings together scientists, clinicians and patients from five UK universities and hospitals (Newcastle, Birmingham, Manchester Metropolitan, University College London and Dundee) to transform understanding of multiple long-term conditions in hospital patients.
Having a child with single ventricle CHD: Parental experience of role and identity
Having a child with single ventricle CHD: Parental experience of role and identity
Having a child with single ventricle CHD: Parental experience of role and identity
The purpose of this study is to interview parents of children aged 16 years or under with single ventricle CHD who have had their completed Fontan surgery. The study is looking to provide a platform for parents to speak about their experiences
For more information click here or contact s.dandy@lancaster.ac.uk
Research at Faculty of Medical Sciences at Newcastle University
Having a child with single ventricle CHD: Parental experience of role and identity
Having a child with single ventricle CHD: Parental experience of role and identity
The Network is developing a research strategy and programme which aims to address issues that are important for the further development and improvement of clinical practice for the benefit of CHD patients.
Click the button below to read more about research at Faculty of Medical Sciences at Newcastle University on our dedicated Research page!