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Young Persons Group

The Young Persons Group

Are you 12 – 18 years old and living with Congenital Heart Disease?


Join the Network's Young Persons Group and influence decisions and service planning that may have an impact on your future!


The Young Persons Group

The Young Persons Group

The Young Persons Group

Be the voice of young service users across the North East and North Cumbria Congenital Heart Disease Network (NENC-CHDN)! This public group is for young people to participate in discussions, critique relevant information and documentation, meet others and have your voice heard about what matters to you. The group forum makes sure we have a balanced, well represented view of Congenital Heart Disease (CHD) services for young people, both positive and negative.

Can I join?

The Young Persons Group

The Young Persons Group

Everyone between 12 and 18 years old who uses the congenital heart disease service, or may do so in the future, is welcome to join the group and influence decisions and service planning that may have an impact on your future. 

Why we want YOU to join?

The Young Persons Group

Why we want YOU to join?

Your views help us get CHD services right for young people and support us towards continuous improvement across the region. Your voice can influence decisions and services that affect you! Get involved and make sure we hear you and act on your views while you learn new skills: communication, listening, presenting, teamwork, supporting peers and positive role modelling.



What do members do?

What do members do?

Why we want YOU to join?

Voluntary participation can take place in a variety of ways: Teams calls, phone calls, emails, email surveys, social media, forums, art projects, videos, storytelling, working groups, group meetings, board meetings and national meet

How do I join?

What do members do?

About the NENC-CHDN

Please get in touch on nuth.enquiries-nencchdn@nhs.net if you would like to make a positive contribution to the community of young people living with CHD. We can’t wait to have you on board!


Our "Contact Us" page - Please click here

About the NENC-CHDN

What do members do?

About the NENC-CHDN

We listen and act on the views of those who use and care about our CHD services! The NENC-CHDN covers the whole lifetime pathway of care including prenatal diagnosis, maternity, obstetric and neonatal services, children’s services, transition, adult congenital cardiac services and palliative care. It provides a single network for both children and adults. The network’s primary aim is to bring together clinicians, commissioners, patients and parent representatives and other stakeholders to meet the NHS England Standards. Whilst there is a small team coordinating the network itself, our success is dependent on the commitment and energy of all those involved with CHD services across the region

Photo Gallery

The Young Person's Group logo

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Person's Group's Graffiti Event 6th November 2021 in Washington.

Young Persons Group Meetings

Coming soon

Social media, please click the icons and keep up to date!

Are you looking for support? Check out our partners:

The Somerville Foundation
British Heart Foundation
Little Hearts Matter

Transition Survey

What is important to you?

What is important to you when transitioning from paediatric to adult CHD services?  


 Please click here to fill out our feedback form and have your say, your voice is important! 

Download PDF

Leaflet: Young Persons Group

Do you want to join the YPG?

Please email the Network's Lead Nurse kaye.walsh1@nhs.net to register your interest!

Please click here to download a copy of our leaflet

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