Young Persons Group

Be the voice of young service users across the North East and North Cumbria Congenital Heart Disease Network (NENC-CHDN)! This public group is for young people to participate in discussions, critique relevant information and documentation, meet others and have your voice heard about what matters to you. The group forum makes sure we have a balanced, well represented view of Congenital Heart Disease (CHD) services for young people, both positive and negative.

Everyone between 12 and 18 years old who uses the congenital heart disease service, or may do so in the future, is welcome to join the group and influence decisions and service planning that may have an impact on your future. 

Your views help us get CHD services right for young people and support us towards continuous improvement across the region. Your voice can influence decisions and services that affect you! Get involved and make sure we hear you and act on your views while you learn new skills: communication, listening, presenting, teamwork, supporting peers and positive role modelling.

Voluntary participation can take place in a variety of ways: Teams calls, phone calls, emails, email surveys, social media, forums, art projects, videos, storytelling, working groups, group meetings, board meetings and national meet

Please get in touch on nuth.enquiries-nencchdn@nhs.net if you would like to make a positive contribution to the community of young people living with CHD. We can’t wait to have you on board!

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We listen and act on the views of those who use and care about our CHD services! The NENC-CHDN covers the whole lifetime pathway of care including prenatal diagnosis, maternity, obstetric and neonatal services, children’s services, transition, adult congenital cardiac services and palliative care. It provides a single network for both children and adults. The network’s primary aim is to bring together clinicians, commissioners, patients and parent representatives and other stakeholders to meet the NHS England Standards. Whilst there is a small team coordinating the network itself, our success is dependent on the commitment and energy of all those involved with CHD services across the region