NENC-CHD Network
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    • HOME
    • ABOUT US
      • Who We Are
      • Our centres
      • Nurse Specialists
      • Network Governance
      • Network Documents
    • PATIENTS AND FAMILIES
      • Patient Engagement Group
      • Chuf Wellbeing Project
      • Patient Stories
      • Useful Information
      • Young Persons Group
      • Outreach Clinics
    • PROFESSIONALS
      • Guidelines & Pathways
      • Education
    • CHARITIES
      • Chuf
      • Childrens Heart Fed
      • Other Charities & Support
    • Research
    • NEWS
    • EVENTS
    • Contact Us
  • HOME
  • ABOUT US
    • Who We Are
    • Our centres
    • Nurse Specialists
    • Network Governance
    • Network Documents
  • PATIENTS AND FAMILIES
    • Patient Engagement Group
    • Chuf Wellbeing Project
    • Patient Stories
    • Useful Information
    • Young Persons Group
    • Outreach Clinics
  • PROFESSIONALS
    • Guidelines & Pathways
    • Education
  • CHARITIES
    • Chuf
    • Childrens Heart Fed
    • Other Charities & Support
  • Research
  • NEWS
  • EVENTS
  • Contact Us

Guidelines & Pathways

CHD

ACEi guidelines NUTH (pdf)Download
Emergency Health Care Plan (pdf)Download
Entresto guideline NUTH (pdf)Download
Maternity Fetal abnormality referral pathway (pdf)Download
Medicines-for-heart-conditions (pdf)Download
Patent Ductus Arteriosus (PDA) (pdf)Download
Prophylaxis against infective endocarditis (pdf)Download

Paediatric cardiology

Follow-up of children with CHD from 6 months including transition to Adult Congenital Services (pdf)Download
Freeman Heart Failure PICU Referral Proforma (docx)Download
Guideline referral to CHIPS (pdf)Download
Management of Hypercyanotic Spells in Tetralogy of Fallot (pdf)Download
Paediatric Psychology Referral Form (docx)Download
Perinatal Planning CHD Pathway (pdf)Download
Retrieval of CHD Child (pdf)Download
Retrieval of CHD Neonate (pdf)Download
Specialist advice for anaesthesia (pdf)Download
Use of Dinoprostone in suspected duct dependent congenital heart conditions (pdf)Download

Adult CHD

Aortopathy Surveillance Guideline (pdf)Download
Adult on-call referral pathway (pdf)Download
CARDIGEN Guidelines (pdf)Download
Diagnosis and management of iron deficiency in adults with cyanotic congenital heart disease (pdf)Download
Guidelines for cardiac assessment in new patients over 16yrs of age (pdf)Download
Retrieval of CHD Adult (pdf)Download
Specialist advice for anaesthesia (pdf)Download

British Society of Echocardiography (BSE)

New guidance on adult congenital echocardiography

Published 03/11/2025


The British Society of Echocardiography (BSE) has published a new position statement on adult congenital echocardiography in hospitals without congenital heart disease surgery, endorsed by the British Congenital Cardiac Association (BCCA).


 New guidance on adult congenital echocardiography 

Position statement: Echocardiography in 16-17 year olds

Published 30/12/2021


In light of the increasing number of referrals into adult echo services for outpatient echocardiography imaging of 16-17 year olds, we recommend the following as a practice guideline. Practice will necessarily vary from centre to centre depending upon the availability and interaction with local paediatric echo services.


 Position statement: Echocardiography in 16-17 year olds 

British Congenital Cardiac Association (BCCA)

BCCA Referral Guidelines For Accessing Congenital Services (pdf)Download

UK Teratology Information Service (UKTIS)

Use of statins in pregnancy

UKTIS Statins Guide

NECTAR - regional transport and retrieval service

NECTAR paediatric guidelinesNECTAR Neonatal Collapse

New pathway for paediatric cardiology referrals

  

The online pathway for paediatric referral is now live. 


 Please find below the form required for all referrals into the paediatric cardiology service.


 You can also access this form via the Newcastle upon Tyne Hospitals NHS Foundation Trust website.


Further guidance in relation to referral criteria can be accessed below in the guidance document and the flow diagram.


The completed referral form should be sent to nuth.referrals-nencchdn@nhs.net


If you have any enquiries about the new pathway, please email nuth.enquiries-nencchdn@nhs.net


CHD Referral Form 2023 (pdf)

Download

Paediatric cardiology referral guideline (pdf)

Download

Referral pathway flow diagram (pdf)

Download

Guidelines/pathways in development

  • Follow up Intervals for adults with CHD
  • Learning disorders and complex ACHD pathway
  • Murmur (innocent) guideline
  • Palliative care pathway
  • Precordial catch syndrome
  • Pre-pregnancy counselling, contraception and pregnancy in CHD


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