• HOME
  • ABOUT US
    • Who We Are
    • Our centres
    • Nurse Specialists
    • Network Governance
    • Network Documents
  • PATIENTS AND FAMILIES
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Young Persons Group
    • Outreach Clinics
  • PROFESSIONALS
    • General Information
    • Guidelines & Pathways
    • Education
    • Education Resources
    • elfh CHD programme
  • CHARITIES
    • CHUF
  • Research
  • NEWS
  • EVENTS
  • Contact Us
  • More
    • HOME
    • ABOUT US
      • Who We Are
      • Our centres
      • Nurse Specialists
      • Network Governance
      • Network Documents
    • PATIENTS AND FAMILIES
      • Patient Engagement Group
      • Patient Stories
      • Useful Information
      • Young Persons Group
      • Outreach Clinics
    • PROFESSIONALS
      • General Information
      • Guidelines & Pathways
      • Education
      • Education Resources
      • elfh CHD programme
    • CHARITIES
      • CHUF
    • Research
    • NEWS
    • EVENTS
    • Contact Us
  • HOME
  • ABOUT US
    • Who We Are
    • Our centres
    • Nurse Specialists
    • Network Governance
    • Network Documents
  • PATIENTS AND FAMILIES
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Young Persons Group
    • Outreach Clinics
  • PROFESSIONALS
    • General Information
    • Guidelines & Pathways
    • Education
    • Education Resources
    • elfh CHD programme
  • CHARITIES
    • CHUF
  • Research
  • NEWS
  • EVENTS
  • Contact Us

Patient Resources

General health

The Little Orange Book: helping families with their children's health (pdf)

Download

Driving and Congenital Heart Disease (pdf)

Download

Emotional wellbeing for adults with CHD (pdf)

Download

Useful tips ACHD (pdf)

Download

Better Health Adult Webinar Slides (pdf)

Download

NENC Healthier Together App Poster (pdf)

Download

Travel

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

Download document

British Heart Foundation

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

Learn more

Somerville Foundation

ACHD Travel Directory 13th edition

Somerville Foundation

Learn more

Heart-related

24 Hour Heart Monitor Ambulatory ECG (pdf)

Download

Patient transplant leaflet (pdf)

Download

Patient guidance for home blood pressure monitoring (pdf)

Download

Bacterial Endocarditis (pdf)

Download

Heart Murmur information leaflet for parents and carers (pdf)

Download
Fontan

Investigations and Procedures

Information Leaflet_Percutaneous atrial septal defect closure (pdf)

Download

Recovering from Heart Surgery (pdf)

Download

Recovering from Valve Surgery (pdf)

Download

Electrocardiogram (ECG) (pdf)

Download

Aortic valve reconstruction (pdf)

Download

YouTube Resources

ACHD Mental Health & Wellbeing webinars

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

Join Clinical Psychologists, Lucy & Penny, for sessions covering:


  •  Low mood (https://www.youtube.com/watch?v=F_lE6NUxIiE)
  • Stress & Resilience (https://www.youtube.com/watch?v=WGFLVMtTXpg)
  • Understanding anxiety (https://www.youtube.com/watch?v=62i5bsWYtMw)

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

  • https://www.youtube.com/watch?v=ibm-liM0cRI

PICU Virtual Tour

Heart to Heart: One Manifesto. One Pledge. One Promise.

PICU Virtual Tour

  • https://youtu.be/u_MUnk2_C7o?feature=shared

Useful links

Heart Information

British Heart Foundation - Information for Parents

Charities & Support Groups

NHS website 


British Heart Foundation    


Cincinnati Children's Heart Encyclopaedia   


Cove Point Foundation


NHS England National Standards


The Marfan Foundation 


The British Transplant Association


Arrhythmia Alliance 


Fontan


Charities & Support Groups

British Heart Foundation - Information for Parents

Charities & Support Groups

Chuf


Children's Heart Federation (CHF)


Down's Heart Group


Little Hearts Matter  


The Somerville Foundation


The Max Appeal


Tiny Tickers



British Heart Foundation - Information for Parents

British Heart Foundation - Information for Parents

British Heart Foundation - Information for Children

 Congenital Heart Disease 


Coarctation of the aorta


 Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


 Physical activity




 



British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

Coarctation of the aorta


Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


Physical activity


PECSIG- Information for Parents

British Heart Foundation - Information for Children

Healthier Together North East and North Cumbria

Information on Symptoms


Information on Structural Problems


Information on Arrhythmias and Electrical things


Information on Medicines and Drugs


 



Healthier Together North East and North Cumbria

British Heart Foundation - Information for Children

Healthier Together North East and North Cumbria

A great place to find accurate and trusted NHS healthcare advice.

  




Weight Management

Information for adults

Information for children and young people

Information for children and young people

 

NHS Better Health resources and Weight loss plan app 


BDA The Association of UK Dieticians 'All Food Fact' pages


The NHS Digital Weight Management Programme supports adults living with obesity who also have a diagnosis of diabetes, hypertension or both, to manage their weight and improve their health.


North Yorkshire 'Healthy You' service and information on healthy eating and keeping active


Northumbria Healthcare NHS Foundation Trust weight management resources


Active North Tyneside will help you get active and feel the benefits of living a longer and healthier life



Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust weight loss resources


Body, Diet and Action for improved health and wellbeing

Information for children and young people

Information for children and young people

Information for children and young people

 

North Cumbria Integrated Care NHS Foundation Trust Public health 5 to 19 - Healthy Habits 4 Life

British Dietetic Association Healthy Eating for Children

Parents of children with congenital heart disease

Find out about the experience of having a child with congenital heart disease by seeing and hearing people share their personal stories on film. 


In partnership with the British Heart Foundation, researchers travelled all around the UK to talk to the parents of 30 children in their own homes. Find out what people said about issues such as diagnosis, talking to your child, surgery and impact on family. 

Find out more

Copyright © 2025 NENCCHDN - All Rights Reserved.

  • Privacy Policy

Powered by

This website uses cookies.

We use cookies to analyse website traffic and optimise your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

DeclineAccept