• HOME
  • ABOUT US
    • Who We Are
    • Where We Operate
    • Network Team
    • Network Board
    • Network Governance
    • Board Documents
    • Annual Reports
  • PATIENTS AND FAMILIES
    • Young Persons Group
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Outreach Clinics
    • Patient Surveys
    • Patient Resources
    • Clinical Pathways
    • Our Hospitals
    • Patient Resources NEW
  • PROFESSIONALS
    • Education Programme
    • Clinical Information
    • Nurse Specialists
    • Link Nurses
    • PEC programme
    • Presentations
    • Resources
  • NEWS
  • EVENTS
  • CHARITIES
    • CHUF
  • Contact Us
  • Research
  • More
    • HOME
    • ABOUT US
      • Who We Are
      • Where We Operate
      • Network Team
      • Network Board
      • Network Governance
      • Board Documents
      • Annual Reports
    • PATIENTS AND FAMILIES
      • Young Persons Group
      • Patient Engagement Group
      • Patient Stories
      • Useful Information
      • Outreach Clinics
      • Patient Surveys
      • Patient Resources
      • Clinical Pathways
      • Our Hospitals
      • Patient Resources NEW
    • PROFESSIONALS
      • Education Programme
      • Clinical Information
      • Nurse Specialists
      • Link Nurses
      • PEC programme
      • Presentations
      • Resources
    • NEWS
    • EVENTS
    • CHARITIES
      • CHUF
    • Contact Us
    • Research
  • Sign In
  • Create Account

  • My Account
  • Signed in as:

  • filler@godaddy.com


  • My Account
  • Sign out

Signed in as:

filler@godaddy.com

  • HOME
  • ABOUT US
    • Who We Are
    • Where We Operate
    • Network Team
    • Network Board
    • Network Governance
    • Board Documents
    • Annual Reports
  • PATIENTS AND FAMILIES
    • Young Persons Group
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Outreach Clinics
    • Patient Surveys
    • Patient Resources
    • Clinical Pathways
    • Our Hospitals
    • Patient Resources NEW
  • PROFESSIONALS
    • Education Programme
    • Clinical Information
    • Nurse Specialists
    • Link Nurses
    • PEC programme
    • Presentations
    • Resources
  • NEWS
  • EVENTS
  • CHARITIES
    • CHUF
  • Contact Us
  • Research

Account


  • My Account
  • Sign out


  • Sign In
  • My Account

INFORMATION FOR PATIENTS AND FAMILIES

Useful links and leaflets

Heart Information

Charities & Support Groups

Charities & Support Groups

NHS website 


British Heart Foundation    


Cincinnati Children's Heart Encyclopaedia   


Cove Point Foundation


British Congenital Cardiac Association  

NHS England National Standards


  The Marfan Foundation 


The Transplant Association

Arrhythmia Alliance  


Fontan


Charities & Support Groups

Charities & Support Groups

Charities & Support Groups

The Children's Heart Unit Fund  


Down's Heart Group


Little Hearts Matter  


The Somerville Foundation


The Max Appeal


Tiny Tickers


 Signpost North East & North Cumbria 


British Heart Foundation - Information for Parents

British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

 Congenital Heart Disease 


Coarctation of the aorta


 Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


 Physical activity




 



British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

Coarctation of the aorta


Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


Physical activity





 



Weight Management

Information for adults

NHS Better Health resources and Weight loss plan app 


BDA The Association of UK Dieticians 'All Food Fact' pages


The NHS Digital Weight Management Programme supports adults living with obesity who also have a diagnosis of diabetes, hypertension or both, to manage their weight and improve their health.


North Yorkshire adult weight management service and information on healthy eating and keeping active


Northumbria Healthcare NHS Foundation Trust weight management resources


Active North Tyneside will help you get active and feel the benefits of living a longer and healthier life


Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust weight loss resources


Body, Diet and Action for improved health and wellbeing

Information for children and young people

Cumbria County Council Public health 5-19 - healthy eating and healthy weight


British Dietetic Association Healthy Eating for Children

ACHD psychology service Freeman Hospital - update December 2021

 The waiting list for psychology service is closed temporarily to all but urgent referrals due to the Clinical Psychology Lead leaving. Please find below some sources of online support, helpline support and face-to-face support for common mental health issues. Your GP is also a good source of support and should have options available to them such as counselling, CBT and social prescribing (e.g., for activities like gym membership). 


There is also the monthly transplant café that run by Lucy Attenborough, psychologist at the Freeman transplant unit, (online) and all are very welcome. The café is a supportive and informal place to meet others who have been through the transplant process or are on the waiting list. 

Please contact Jeanette (team secretary 0191 213 8248) to register your interest or email: nuth.healthpsychology-2@nhs.net 


Remember that it is better to take small steps, like going out for a walk, than to aim too high and feel over whelmed. Getting outside and walking is one on the best and most accessible ways to improve your well-being and your physical health. Set small achievable goals each day around a physical activity, a social activity, a mental challenge, and some relaxation. Look at the NHS health pages for more information about exercise and mental health:

www.nhs.uk/better-health/get-active/

www.nhs.uk/mental-health/self-help/tips-and-support/mindfulness/


A-Z of support services


www.anxietyuk.org.uk

Anxiety UK – help to live with, and understand, anxiety also have a helpline (08444) 775 774.

assisttraumacare.org.uk

Post-Traumatic Stress Disorder (PTSD) support and helpline 01788 551919. 

www.cruse.org.uk/

Bereavement support, also have a helpline 0808 808 1677.

www.mind.org.uk/

Support for depression and other mental health issues they also have a helpline 0300 123 3393.

www.recoverycollegeonline.co.uk/

Free courses on managing your mental health. Free to use. Excellent resources.

www.samaritans.org

Samaritans – Emotional support when in distress or despair. Helpline 116 123 (landline and mobile).

Shout

Free, confidential, 24/7 text messaging support service for anyone who is anxious, stressed, depressed, suicidal or overwhelmed and who need immediate support. Text CONTACT to 85258

www.talkinghelpsnewcastle.org/resources/

A range of resources free and online for managing mood and anxiety produced by Newcastle Hospitals Trust.

www.talkinghelpsnewcastle.org/

Newcastle Hospital Trust Talking Helps therapy service (takes online self-referrals or call 0191 282 6600, your GP can also refer you).


Please keep in touch with the outpatient team about your mental health and if you feel that your symptoms are worsening do let us, or your GP, know straight away.

General Information Leaflets

CHD Outreach Clinics (pdf)Download
Emotional wellbeing for Adults with CHD (pdf)Download
Useful tips ACHD patients (pdf)Download
Signposting letter ACHD psychology (pdf)Download

British Heart Foundation Leaflets

Coarctation of the aorta

Coarctation of the aorta

Coarctation of the aorta

Find out more

Physical activity

Coarctation of the aorta

Coarctation of the aorta

Find out more

Congenital Heart Disease

Congenital Heart Disease

Congenital Heart Disease

Find out more

Tetralogy of Fallot

Congenital Heart Disease

Congenital Heart Disease

Find out more

Investigations and Procedures

Information Leaflet_Percutaneous atrial septal defect closure (pdf)Download
Recovering from Heart Surgery (pdf)Download
Recovering from Valve Surgery (pdf)Download
Electrocardiogram (ECG) (pdf)Download
24 Hour Heart Monitor Ambulatory ECG (pdf)Download
Aortic valve reconstruction (pdf)Download
Percutaneous Atrial Septal Defect Closure (pdf)Download

Worried about a poorly child?

From Newcastle Gateshead CCG, the Little Orange Book helps parents of under-fives with practical information about common childhood conditions. Distributed to all new mums in Newcastle and Gateshead through health visitors, this little gem helps parents and carers to recognise and respond to a range of common diseases, illnesses and conditions as well as pointing you to the most appropriate service if you need further support.

Download PDF

Change to children’s A&E services in South Tyneside

These changes will have an impact on some of the children and families in our network. You can download your own copy to print.

Download PDF

ACHD Travel Directory

The ACHD Travel Directory is intended to help you find emergency congenital heart care when travelling. 

Please note that we are in the process of getting the Freeman details updated with the directory, the phone number is still 0191 233 6161 but the new email is nuth.achdnurses@nhs.net 

Congenital Cardiology

Download PDF

The Little Orange Book

Download PDF

Worried about a poorly child?

Every parent worries when our little ones are not well. But help is at hand! Find out more by clicking the button below and download your own copy of The Little Orange Book.

Find out more

Parents of children with congenital heart disease

Find out about the experience of having a child with congenital heart disease by seeing and hearing people share their personal stories on film. In partnership with the British Heart Foundation, researchers travelled all around the UK to talk to the parents of 30 children in their own homes. Find out what people said about issues such as diagnosis, talking to your child, surgery and impact on family. 

Find out more

Copyright © 2023 NENCCHDN - All Rights Reserved.

  • COVID INFORMATION
  • Privacy Policy

Powered by GoDaddy Website Builder

This website uses cookies.

We use cookies to analyse website traffic and optimise your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

DeclineAccept