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    • HOME
    • ABOUT US
      • Who We Are
      • Our centres
      • Nurse Specialists
      • Network Governance
      • Network Documents
    • PATIENTS AND FAMILIES
      • Patient Engagement Group
      • Patient Stories
      • Useful Information
      • Young Persons Group
      • Outreach Clinics
    • PROFESSIONALS
      • General Information
      • Guidelines & Pathways
      • Education
    • CHARITIES
      • Chuf
      • Childrens Heart Fed
    • Research
    • NEWS
    • EVENTS
    • Contact Us
  • HOME
  • ABOUT US
    • Who We Are
    • Our centres
    • Nurse Specialists
    • Network Governance
    • Network Documents
  • PATIENTS AND FAMILIES
    • Patient Engagement Group
    • Patient Stories
    • Useful Information
    • Young Persons Group
    • Outreach Clinics
  • PROFESSIONALS
    • General Information
    • Guidelines & Pathways
    • Education
  • CHARITIES
    • Chuf
    • Childrens Heart Fed
  • Research
  • NEWS
  • EVENTS
  • Contact Us

Patient Resources

General health

The Little Orange Book: helping families with their children's health (pdf)Download
Driving and Congenital Heart Disease (pdf)Download
Emotional wellbeing for adults with CHD (pdf)Download
Useful tips ACHD (pdf)Download
Better Health Adult Webinar Slides (pdf)Download
NENC Healthier Together App Poster (pdf)Download

Travel

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

Download document

British Heart Foundation

ACHD Travel Directory 13th edition

ACHD Travel Directory 13th edition

Learn more

Somerville Foundation

ACHD Travel Directory 13th edition

Somerville Foundation

Learn more

Heart conditions

Heart Murmurs (pdf)Download
Bacterial Endocarditis (pdf)Download
Fontan (pdf)Download
Heart transplant (pdf)Download

Patient information leaflets from Children's Heart Federation

click here

Investigations and Procedures

Percutaneous atrial septal defect closure (pdf)Download
Recovering from Heart Surgery (pdf)Download
Recovering from Valve Surgery (pdf)Download
Electrocardiogram (ECG) (pdf)Download
Aortic valve reconstruction (pdf)Download
24 Hour Heart Monitor Ambulatory ECG (pdf)Download
Home blood pressure monitoring (pdf)Download

YouTube Resources

ACHD Mental Health & Wellbeing webinars

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

Join Clinical Psychologists, Lucy & Penny, for sessions covering:


  •  Low mood (https://www.youtube.com/watch?v=F_lE6NUxIiE)
  • Stress & Resilience (https://www.youtube.com/watch?v=WGFLVMtTXpg)
  • Understanding anxiety (https://www.youtube.com/watch?v=62i5bsWYtMw)

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

Heart to Heart: One Manifesto. One Pledge. One Promise.

  • https://www.youtube.com/watch?v=ibm-liM0cRI

PICU Virtual Tour

Who are pharmacists and what do they do?

Who are pharmacists and what do they do?

  • https://youtu.be/u_MUnk2_C7o?feature=shared

Who are pharmacists and what do they do?

Who are pharmacists and what do they do?

Who are pharmacists and what do they do?

  • https://youtu.be/Y1hGyPDe00Y

Useful links

Heart Information

British Heart Foundation - Information for Parents

Charities & Support Groups

NHS website 


British Heart Foundation    


Cincinnati Children's Heart Encyclopaedia   


Cove Point Foundation


NHS England National Standards


The Marfan Foundation 


The British Transplant Association


Arrhythmia Alliance 


Fontan


Charities & Support Groups

British Heart Foundation - Information for Parents

Charities & Support Groups

Chuf


Children's Heart Federation (CHF)


Down's Heart Group


Little Hearts Matter  


The Somerville Foundation


The Max Appeal


Tiny Tickers



British Heart Foundation - Information for Parents

British Heart Foundation - Information for Parents

British Heart Foundation - Information for Children

 Congenital Heart Disease 


Coarctation of the aorta


 Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


 Physical activity




 



British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

British Heart Foundation - Information for Children

Coarctation of the aorta


Tetralogy of Fallot


VSD


ASD


Transposition of the great arteries


Physical activity


PECSIG- Information for Parents

British Heart Foundation - Information for Children

Healthier Together North East and North Cumbria

Information on Symptoms


Information on Structural Problems


Information on Arrhythmias and Electrical things


Information on Medicines and Drugs


 



Healthier Together North East and North Cumbria

British Heart Foundation - Information for Children

Healthier Together North East and North Cumbria

A great place to find accurate and trusted NHS healthcare advice.

  




Weight Management

Information for adults

Information for children and young people

Information for children and young people

 

NHS Better Health resources and Weight loss plan app 


BDA The Association of UK Dieticians 'All Food Fact' pages


The NHS Digital Weight Management Programme supports adults living with obesity who also have a diagnosis of diabetes, hypertension or both, to manage their weight and improve their health.


North Yorkshire 'Healthy You' service and information on healthy eating and keeping active


Northumbria Healthcare NHS Foundation Trust weight management resources


Active North Tyneside will help you get active and feel the benefits of living a longer and healthier life



Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust weight loss resources


Body, Diet and Action for improved health and wellbeing

Information for children and young people

Information for children and young people

Information for children and young people

 

North Cumbria Integrated Care NHS Foundation Trust Public health 5 to 19 - Healthy Habits 4 Life

British Dietetic Association Healthy Eating for Children

Parents of children with congenital heart disease

Find out about the experience of having a child with congenital heart disease by seeing and hearing people share their personal stories on film. 


In partnership with the British Heart Foundation, researchers travelled all around the UK to talk to the parents of 30 children in their own homes. Find out what people said about issues such as diagnosis, talking to your child, surgery and impact on family. 

Find out more

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