Raising awareness in schools
The charities founder, Vicki Eagle, has been raising awareness of inherited cardiac conditions in schools, talking with young people about their heart health
Providing vital psychological support
Poppy’s Light Foundation are dedicated to supporting children, young people, and families affected by inherited cardiac conditions through providing vital psychological support.
To strengthen this mission, they have partnered with Select Psychology and Calm Together to deliver holistic, trauma-informed care that meets the unique emotional and mental health needs of our community.
Find out more here Partners for psychological care - Poppy's Light Foundation
What are Inherited Cardiac Conditions?
Inherited Cardiac Conditions (ICC) are a group of genetic heart disorders passed down through families, affecting approximately 1 in 250 people globally. They can impact individuals of all ages.
The three main types are:
- Cardiomyopathies, which are diseases of the heart muscle such as Hypertrophic Cardiomyopathy (HCM) or Dilated Cardiomyopathy (DCM).
- Channelopathies, which affect the heart’s electrical system, like Long QT Syndrome (LQTS) or Brugada Syndrome.
- Aortopathies that affect the aorta, the body’s main blood vessel, such as Marfan Syndrome.
These conditions are typically passed down in an autosomal dominant pattern, meaning only one parent needs to carry the gene alteration for it to be passed to a child.
