Your views should inform service development, this helps us get services right for patients and supports continuous improvement across the North East and North Cumbria.
We recognise and value the contribution of those who use the CHD services in shaping the future.
Are you a young person aged 12 - 18 who lives with congenital heart disease?
Did you know your voice can influence decisions and services that affect you?
Get involved in this group, make new friends and make sure that the Network hears you and acts on your views!
We are conducting a national study to identify and prioritise areas of future research in congenital heart disease that are most important to patients, their families, and healthcare professionals. This is your chance to have your say –
so we want to hear from you!
ADMISSION is a new Research Collaborative funded by the MRC and NIHR that brings together scientists, clinicians and patients from five UK universities and hospitals (Newcastle, Birmingham, Manchester Metropolitan, University College London and Dundee) to transform understanding of multiple long-term conditions in hospital patients.
The purpose of this study is to interview parents of children aged 16 years or under with single ventricle CHD who have had their completed Fontan surgery. The study is looking to provide a platform for parents to speak about their experiences
For more information click here or contact firstname.lastname@example.org
The Network is developing a research strategy and programme which aims to address issues that are important for the further development and improvement of clinical practice for the benefit of CHD patients.
Click the button below to read more about research at Faculty of Medical Sciences at Newcastle University on our dedicated Research page!
Delivering care closer to home is very much at the centre of the ambitions of the network
The Network loves to hear your voice about CHD services and how they are delivered.
Find out about your local cardiology centre, local facilities and how to get there
Contact information for your nurse specialists and other useful contacts
Information about your condition and what to expect during your clinic visit